|This Site was created to assist parents of children who have recenty discovered their child has the 17Q21.31 microdeletion. If your like me, I spent months searching the web for information and contacts. This is a rare disorder with no real support group or a one stop shop of information. Hopefully this site can provide a little relief, real information and a network of parents dealing with exactly the same issues.
I am a parent of a child recently diagnosed with 17Q21.31 microdeletion. I have made contact with several other parents in the US and UK thru the Unique - rare chromosome disorder site (http://www.rarechromo.org)
It is a clearing house of all genetic disorders and they have an outstanding article on 17Q21.31.
If you do not want to register on Unique, I can email you the article.
I'd love for you to email me and tell me your story. At your request, I will pass your email on to other parents I've contacted.
I hope this site will be able to provide more in the near futur